Best Life Best Death

Allison Applebaum, Ph.D. sees caregiving through both a personal and professional lens, giving her a unique take on the logistics of individual situations as well as the broad view. She talks about the “three buckets of responsibilities” that are common for carepartners; offers ways to create support both internally (think: breathing) and externally (think: build a team of support); and asks two big questions: 1) “How can our healthcare system better prepare caregivers for the tasks they face?” and 2) “What does it mean to find meaning in caregiving?” https://allisonapplebaum.com/ https://www.instagram.com/drallisonapplebaum/ https://twitter.com/DocApplebaum

Dr Matthew Tyler is a palliative doctor and champion via social media for having the hard conversations when necessary. He knows that doctors are doing their best, and some excel at breaking difficult news to patients. But communication skills have to be developed over time and with experience, and every patient is unique in their desire for “That Conversation.” So – you have to train your doctor in knowing you! What is a “goals of care conversation”? How do you know what success looks like for you as an individual? How do we begin these conversations with our doctors? I hope that this podcast episode helps you take steps to ensure that you and your doctor are aligned on the important subject of your care. https://howtotrainyourdoctor.com/ https://www.instagram.com/howtotrainyourdoctor/ https://www.youtube.com/channel/UCj8dh2NwtsW2B1d9SyGhXSg https://www.linkedin.com/in/matthew-tyler-4848b8206/

This conversation with Dr Aditi Sethi is a heart-felt discussion of a film, a doctor’s experience of an unusual patient, and the idea that “death has value.” Dr Sethi is the type of palliative care and hospice doctor who brings full presence and full heart to everything she does, and together we reflect on the film, her friendship and doula work with Ethan Sisser, and what it means to die in community. Whether or not you are able to see the movie, our conversation describes the film so you can imagine it, explains Dr Sethi's involvement and views, and asks the question: what would it be like to be surrounded by a loving community when we die? To learn more... Visit the film's website: www.thelastecstaticdaysmovie.com Subscribe to THE LAST ECSTATIC DAYS on YouTube:  http://tiny.cc/TheLastEcstaticDaysSub Follow THE LAST ECSTATIC DAYS on Instagram: https://bit.ly/TheLastEcstaticDays-IG Like THE LAST ECSTATIC DAYS on Facebook: https://bit.ly/TheLastEcstaticDays-FB

Willow End of Life Education and Planning is all about changing the conversation around death and dying to include living. As Reena Lazar says, “All that matters in the end, matters now.” We talk about how the finiteness of life is profoundly motivating; how thinking about the end and working backwards makes a difference in how we live; the impact of a quick love letter exercise; and how conversations are key. We even dive into five concrete steps that can help guide you in having more successful end-of-life conversations with someone you love. https://www.willoweol.com/ Follow on socials: Facebook Instagram Twitter LinkedIn

Caring for someone who is dying takes a different approach, and family members may not always remember that or see that it is no longer time to "seek a cure." Katie Duncan and I discuss some of the challenges that family caregivers face when someone is dying: realizing the time to "fix" is at an end; stepping into a role with little or no training; adjusting to this new role, often from a geographic distance; acknowledging and adjusting to the constantly changing needs of the loved one; and figuring out who to turn to for guidance and resources. As educator Barbara Karnes says, “Dying is not a medical event, but a community event.” Listen in to learn more. Follow her on socials: ⁠https://www.facebook.com/death.care.coach⁠ ⁠https://www.instagram.com/death.care.coach⁠ ⁠https://www.youtube.com/channel/UCkE5aFVFxWT46nNar91cLXw⁠⁠

At some point in your life, caregiving will likely come upon you, if it hasn’t already. As Rosalynn Carter noted, there are only four kinds of people in this world: “Those who have been caregivers; those who are currently caregivers; those who will be caregivers; and those who will need caregivers." What can we put in place to help folks in this role? Katie helps us think through some key questions, including: What's the financial picture, and how does that impact possible options? Who is in our “village”? What are the gaps in care? How can we organize a schedule and fill in those gaps? What’s the right amount of help and how do we find resources?  Follow her on socials: https://www.facebook.com/death.care.coach https://www.instagram.com/death.care.coach https://www.youtube.com/channel/UCkE5aFVFxWT46nNar91cLXw

Sonya Barsness brings theory and practice together in her work and teaching as a "revisionary" Gerontologist. How can we improve the experience of aging in the 2020s in the US? What would it mean to be more positive in our understanding and actual experience of aging? What do seniors need as they age? What do humans need at any age, and how do we keep it or create it as we grow older? Perhaps we could be fighting for a paradigm of aging that celebrates the experience of growing older, sees each older person as a unique person, and recognizes that aging is multi-dimensional! Check out her website: https://www.sbcgerontology.com Follow her on Facebook: ⁠www.facebook.com/SonyaBarsnessConsulting/m⁠

Why is this one of my favorite books? How can a book like this have a positive impact on your view of your life *and* your death? What are some pragmatic topics we could benefit from thinking about? What are some of the thoughtful gems from authors BJ Miller, MD and Shoshana Berger? Listen in as I talk about this book and see if you want to add it to your nightstand pile... A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death.

This week: a joint podcast with The Heart of Hospice and host Helen Bauer. This is swift-talking, wide-ranging, longer-than-usual chat! What brought me into end of life work? Why might any of us want a “supported death”? How can end-of-life workers bring an open mind to any death? How can caregivers be held, metaphorically and literally? What can we learn while in a relationship with hospice? How can we hold expectation vs hope? How do we support the multiple needs of various people involved in any caregiving situation? At the end of life, how do you begin to let go of the bonds of the world? *Bonus trivia: What’s Diane’s end-of-life playlist?

Description:This podcast is jampacked with content, including a discussion of advance directives for dementia, Voluntary Stopping of Eating and Drinking, and a deep dive into decision making. In this week’s conversation, Chaplain Hank Dunn suggests a framework for thinking things through, including asking: 1) What’s the goal that you are trying to accomplish? 2) What would the patient want, and what does the patient think about their current and probable future condition? 3) What is in the best interest of the patient? and 4) What is the prognosis and probable consequences if a certain treatment plan is followed? Join us for all this good thinking and more! Visit website: https://hankdunn.com/ Instagram: https://www.instagram.com/hospicechaplainhank/ Facebook: https://www.facebook.com/Hard-Choices-for-Loving-People-191343157564700 Join us for all this good thinking and more!