Lara Bloom
President and CEO of The Ehlers-Danlos Society, patient advocate and organizational leader driving global research, policy, and education efforts for EDS and HSD.
Best podcasts with Lara Bloom
Ranked by the Snipd community
13 snips
Dec 23, 2025 • 1h 6min
The Roadmap That Could Change EDS Forever with Lara Bloom (Ep 176)
Lara Bloom, President and CEO of The Ehlers-Danlos Society, is a dynamic patient advocate focused on transforming care for those with EDS and HSD. In this conversation, she unveils the ambitious Road to 2026, aiming to align global policies and education. Blooms discusses the urgent need for early diagnosis, highlights research gaps, and critiques outdated medical attitudes. With insights into the Society's evolving strategies, Lara inspires hope for meaningful changes in care and advocacy, urging patients to actively participate in their health journeys.
8 snips
Jul 7, 2020 • 34min
“Have you tried _____?”
Lara Bloom, patient expert and Ehlers-Danlos Society CEO who trains clinicians. Sneha Dave, student and youth health advocate living with ulcerative colitis. Lara Parker, writer at BuzzFeed who chronicles life with endometriosis. They talk about unsolicited “have you tried” suggestions, how privilege shapes access to care, the maze of treatments people try, and the value of community and listening.
