Inappropriate Questions “Have you tried _____?”
8 snips
Jul 7, 2020 
Lara Bloom, patient expert and Ehlers-Danlos Society CEO who trains clinicians. Sneha Dave, student and youth health advocate living with ulcerative colitis. Lara Parker, writer at BuzzFeed who chronicles life with endometriosis. They talk about unsolicited “have you tried” suggestions, how privilege shapes access to care, the maze of treatments people try, and the value of community and listening.
AI Snips
Chapters
Transcript
Episode notes
Daily Cannabis And Costly Holistic Mix
- Lara Parker relies on medical cannabis daily to manage endometriosis pain and severe post-surgical nausea.
- She pairs surgery with acupuncture, chiropractic care, and cupping but emphasizes these options are costly and still leave her in daily pain.
Sit With Pain Instead Of Fixing It
- Do sit with someone in their pain rather than offering fixes when they share chronic illness experiences.
- Lara Parker asks people to acknowledge limits and simply say, "I know I can't fix this, but I am here."
You Don't Look Sick Reaction From Diabetes
- Serena Harding with type 1 diabetes hears suggestions like "stop eating sugar" and finds them invalidating and uninformed.
- She notes people act like experts despite not knowing that a cure would be discovered outside casual advice.