Make Visible: Chronic Illness Explored
Visible with Emily Kate Stephens
Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive into the science of energy-limiting, chronic illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions.
From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives.
Join us every two weeks.To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:
Make Visible
@visible_health
@visible.health
From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives.
Join us every two weeks.To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:
Make Visible
@visible_health
@visible.health
Episodes
Mentioned books
Sep 18, 2024 • 41min
#1 Patient Power: scientific and policy progress with Patient Led Research Collaborative (PLRC)
Hannah Davis and Lisa McCorkell from the Patient Led Research Collaborative (PLRC) highlight their groundbreaking work in patient-driven research on Long Covid and related conditions. They discuss their advocacy achieved through collaborations with organizations like the CDC and WHO, including the introduction of the Long Covid Moonshot Act aimed at securing $1 billion for research annually. Additionally, they launch the Patient-Generated Hypotheses Journal to empower patients in shaping research questions, emphasizing the vital role of lived experiences in addressing chronic illnesses.
Sep 11, 2024 • 2min
Make Visible: Trailer
Introducing Make Visible, the podcast shining a light on complex chronic illness.
Join us every two weeks as journalist Emily Kate Stephens uses her experience of living with an energy limiting condition to bring us the latest research and insights from the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we delve into the science of invisible illness.
makevisible.com
