NETs Get Real with NCAN

This episode of NETs Get Real, we welcome a pretty newly diagnosed NET patient, Jennifer Holmes. Not only does she have NET, which is rare, she also has a rare version of NET...She discusses her journey to diagnosis, how unexpected it was, her treatment, how important mindset and nutrition are to get her through the tough times, her eagerness to be an advocate and so much more!🎙️ Welcome to NCAN’s NETs Get Real Podcast!Brought to you by the Neuroendocrine Cancer Awareness Network (NCAN), this podcast dives deep into the real stories, science, and support behind neuroendocrine tumors (NETs). Each episode features candid conversations with patients, caregivers, advocates, and medical experts who are making a difference in the NET community.💛 What You’ll Hear:Honest and inspiring patient and caregiver journeysInsights from leading NET specialists and researchersTips for navigating diagnosis, treatment, and survivorshipAdvocacy updates and community resourcesWhether you’re newly diagnosed, supporting someone with NETs, or simply want to learn more, NETs Get Real brings you the voices and information that matter most.🎧 Listen. Learn. Get Real.👉 Subscribe to stay updated on new episodes.👉 Share to help raise awareness.👉 Visit ⁠https://netcancerawareness.org⁠ for more information, resources, and support and on social media @netcanceraware💬 Join the conversation:#NETsGetReal #NCAN #NETCancerAwareness #NeuroendocrineCancer #ZebraStrong

This episode of NETs Get Real, we welcome an oncologist from University of Arizona Cancer Center, Dr. Namrata (Neena) Vijayvergia to discuss how she got into treating NET patients, being involved in your treatment plan, advocating for yourself and so much more!🎙️ Welcome to NCAN’s NETs Get Real Podcast!Brought to you by the Neuroendocrine Cancer Awareness Network (NCAN), this podcast dives deep into the real stories, science, and support behind neuroendocrine tumors (NETs). Each episode features candid conversations with patients, caregivers, advocates, and medical experts who are making a difference in the NET community.💛 What You’ll Hear:Honest and inspiring patient and caregiver journeysInsights from leading NET specialists and researchersTips for navigating diagnosis, treatment, and survivorshipAdvocacy updates and community resourcesWhether you’re newly diagnosed, supporting someone with NETs, or simply want to learn more, NETs Get Real brings you the voices and information that matter most.🎧 Listen. Learn. Get Real.👉 Subscribe to stay updated on new episodes.👉 Share to help raise awareness.👉 Visit ⁠https://netcancerawareness.org⁠ for more information, resources, and support and on social media @netcanceraware💬 Join the conversation:#NETsGetReal #NCAN #NETCancerAwareness #NeuroendocrineCancer #ZebraStrong

This episode of NETs Get Real, we welcome Nurse Leader and NEW NCAN Advisory Board Member, Mysti Motz, MBA, BSN, RN! She talks about how she got into NETs, working with legends in the field, strategies for NET patients to navigate their diseas and so much more!🎙️ Welcome to NCAN’s NETs Get Real Podcast!Brought to you by the Neuroendocrine Cancer Awareness Network (NCAN), this podcast dives deep into the real stories, science, and support behind neuroendocrine tumors (NETs). Each episode features candid conversations with patients, caregivers, advocates, and medical experts who are making a difference in the NET community.💛 What You’ll Hear:Honest and inspiring patient and caregiver journeysInsights from leading NET specialists and researchersTips for navigating diagnosis, treatment, and survivorshipAdvocacy updates and community resourcesWhether you’re newly diagnosed, supporting someone with NETs, or simply want to learn more, NETs Get Real brings you the voices and information that matter most.🎧 Listen. Learn. Get Real.👉 Subscribe to stay updated on new episodes.👉 Share to help raise awareness.👉 Visit ⁠https://netcancerawareness.org⁠ for more information, resources, and support and on social media @netcanceraware💬 Join the conversation:#NETsGetReal #NCAN #NETCancerAwareness #NeuroendocrineCancer #ZebraStrong

This episode of NETs Get Real, we welcome a comedian, television writer and accidental trailblazer, Steve Mazan to the show. The long time friend of NCAN talks about his 21+ year NET journey, his tips on how to stay positive, why he chose to document his journey so publicly in his film "Dying to Do Letterman" and so much more!🎙️ Welcome to NCAN’s NETs Get Real Podcast!Brought to you by the Neuroendocrine Cancer Awareness Network (NCAN), this podcast dives deep into the real stories, science, and support behind neuroendocrine tumors (NETs). Each episode features candid conversations with patients, caregivers, advocates, and medical experts who are making a difference in the NET community.💛 What You’ll Hear:Honest and inspiring patient and caregiver journeysInsights from leading NET specialists and researchersTips for navigating diagnosis, treatment, and survivorshipAdvocacy updates and community resourcesWhether you’re newly diagnosed, supporting someone with NETs, or simply want to learn more, NETs Get Real brings you the voices and information that matter most.🎧 Listen. Learn. Get Real.👉 Subscribe to stay updated on new episodes.👉 Share to help raise awareness.👉 Visit ⁠https://netcancerawareness.org⁠ for more information, resources, and support and on social media @netcanceraware💬 Join the conversation:#NETsGetReal #NCAN #NETCancerAwareness #NeuroendocrineCancer #ZebraStrong

This episode of NETs Get Real, we welcome an oncologist from University of Arizona Cancer Center, Dr. Junaid Arshad to discuss his extensive work in NET, building his team at University of Arizona, clinical trial patient resources, post-diagnosis patient resources and so much more!🎙️ Welcome to NCAN’s NETs Get Real Podcast!Brought to you by the Neuroendocrine Cancer Awareness Network (NCAN), this podcast dives deep into the real stories, science, and support behind neuroendocrine tumors (NETs). Each episode features candid conversations with patients, caregivers, advocates, and medical experts who are making a difference in the NET community.💛 What You’ll Hear:Honest and inspiring patient and caregiver journeysInsights from leading NET specialists and researchersTips for navigating diagnosis, treatment, and survivorshipAdvocacy updates and community resourcesWhether you’re newly diagnosed, supporting someone with NETs, or simply want to learn more, NETs Get Real brings you the voices and information that matter most.🎧 Listen. Learn. Get Real.👉 Subscribe to stay updated on new episodes.👉 Share to help raise awareness.👉 Visit ⁠https://netcancerawareness.org⁠ for more information, resources, and support and on social media @netcanceraware💬 Join the conversation:#NETsGetReal #NCAN #NETCancerAwareness #NeuroendocrineCancer #ZebraStrong

Dr. Andrew Marsala, an interventional radiologist at Vanderbilt University, specializes in neuroendocrine tumors (NETs). He shares valuable insights from his extensive training and the importance of a multidisciplinary approach in patient care. Dr. Marsala emphasizes the significance of positivity and self-advocacy for NET patients, urging them to stay informed and engaged. He also discusses the benefits of support resources and the evolving landscape of treatments, aiming to inspire hope even in challenging diagnoses.

This episode we speak with Dr. Steven Libutti, Director of the Rutgers Cancer Institute of New Jersey, Vice Chancellor for Cancer Programs for Rutgers Health and the Senior Vice President for Oncology Services for RWJBarnabas Health.Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Aman Chauhan, a leading medical oncologist at Sylvester Comprehensive Cancer Center, shares valuable insights on neuroendocrine tumors. He discusses recent advancements in diagnosis and treatment, emphasizing the importance of tailored medical advice for individual cases. Dr. Chauhan delves into the risks associated with skull metastases and the implications of different treatment options like alpha versus beta PRRT. He highlights the role of somatostatin analogues and telemedicine in improving patient care, making complex topics accessible and engaging.

This episode highlights NET Basics & The Top 5 Issues to Discuss with Your Doctor presented by Dr. Thor Halfdonnarson and recorded at NCAN’s NET Patient Conference on June 19, 2025 in Minneapolis, MN.Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. James Howe, a surgical oncologist at the University of Iowa, shares insights on neuroendocrine tumors and the vital role of mentorship in his field. He discusses the MEN1 genetic test for assessing cancer risk and the intricacies of diagnosing small bowel tumors. The conversation shifts to histotripsy as a non-invasive treatment for liver lesions and highlights advancements in PRRT for neuroendocrine tumors, emphasizing personalized treatment strategies. Howe also addresses patient concerns about medication transitions and the challenges of participating in clinical trials.