Mad in America: Rethinking Mental Health

Helen Spandler is a Professor of Mental Health Studies at the University of Central Lancashire in the UK. She is the managing editor of Asylum, a non-profit radical mental health magazine. She currently holds the Welcome Trust Investigator Award and is the principal investigator on a new research project about the role of MadZines (comics and graphic memoirs created by people with lived experience of psychosocial disabilities) in contesting mental health knowledge and practice. With over four books and 40 publications to her name, professor Spandler has applied her expertise to a wide range of concerns. She has written about the psychiatric survivor movement, alternate interventions such as therapeutic communities, psychosocial disability, and grassroots activism concerning patient rights. In this interview, she discusses the importance of placing human suffering before theoretical preferences. She argues that understanding truly listening to psychiatric survivors requires us to get accustomed to uncomfortable truths.

This week on the Mad in America podcast we turn our attention to prescription-drug-induced akathisia and joining me to discuss this is Jill Nickens. Jill is the president and founder of the Akathisia Alliance for Education and Research, a nonprofit organization formed by people who have personal experience of akathisia. The group includes biochemists, psychologists, nurses, attorneys, business owners, and others who have survived akathisia, suicidality and devastating personal losses due, in part, to a lack of awareness by medical professionals. They have come together to inform and raise awareness to help minimize the risk of developing akathisia. Akathisia is an extremely distressing neurological disorder that causes severe agitation, an inability to remain still and an overwhelming sense of terror. It is primarily caused by prescribed medications and the most common offenders are anti-psychotics, antidepressants, anti-nausea medications and antibiotics.

Janice Haaken is a professor emeritus of psychology at Portland State University, a clinical psychologist, and a documentary filmmaker. In addition to her work as a professor at Portland State University, Haaken has taught as a Fulbright scholar at Durham University (UK) and University College Cork (Ireland) and as a visiting professor at London School of Economics (UK), York University (UK), and University of Michigan Ann Arbor. Her documentaries, including Guilty Except for Insanity (2009), Mind Zone: Therapists Behind the Front Lines (2014), Milk Men: The Life and Times of Dairy Farmers (2016), and Our Bodies Our Doctors (2019), focus on people and places on the social margins, drawing out their insights on the world around them. Jan has received numerous awards for her filmmaking, most recently the Lena Sharpe Persistence of Vision award at the 2019 Seattle International Film Festival. Haaken publishes extensively in psychoanalysis and feminism, the history and politics of diagnosis, trauma, culture, and memory, and the dynamics of storytelling. In addition to Pillar of Salt: Gender, Memory and the Perils of Looking Back(2000) and Hard Knocks: Psychology and the Dynamics of Storytelling (2010), her new book is called Psychiatry, Politics, and PTSD: Breaking Down (2021). In this interview, she discusses her background in anti-psychiatry and other social movements and her experience liaising between theory and praxis in feminist movements, Occupy Wall Street, Black Lives Matter, and #MeToo. Weaving a history of how both radical and normative ideas and diagnoses in mental health play out in social movements, Jan draws upon her books and films to discuss how activists and mental health professionals alike can better reflect upon their practices and the role they play within larger social systems. We close by following her recent work, which unpacks the benefits and drawbacks of the PTSD diagnosis for personal narratives, collective memory-making, the US military, NGOs, and global mental health critics.

This episode of "Mad in the Family" focuses on a non-drug method to bringing out the best in challenging children, particularly those diagnosed with "ADHD." It is called the Nurtured Heart Approach® and its essence is that, in the words of our guest, "the same intensity that drives people crazy is actually the source of a child's greatness." He is the approach's creator, family therapist Howard Glasser. Glasser has been called "one of the most influential living persons working to reduce children's reliance on psychiatric medications" and is the author of the bestselling book, Transforming the Difficult Child and more than a dozen other books. Glasser is also the Founder of the Children's Success Foundation, whose mission is to advance the work of the Nurtured Heart Approach by conducting training programs to support parents in building Inner Wealth® in their children, educators in formally implementing the approach in school systems, and therapeutic professionals to meet the unique mental health needs of "intense" children. A frequent keynote speaker at conferences on treatment and education, he currently teaches certification trainings on his method, as well as in Dr. Andrew Weil's program at the University of Arizona's School of Integrative Medicine. http://www.howardglasser.com/ https://childrenssuccessfoundation.com/

Lucas Richert is the George Urdang Chair in the History of Pharmacy at the University of Wisconsin, Madison, and historical director for the American Institute of the History of Pharmacy. His work explores prescription and illicit drugs, the American counterculture, and the influence of various power structures within and beyond psychiatry. As a scholar of the pharmaceutical industry, Richert encountered a trove of historical documents that talked about the self-described radicals in mental health from the 1970s. "They cared about relevant issues, things that we talk about right now: racism, the environment, militarism, and political division. It really grabbed hold of me when I got these documents, they were a catalyst." This project turned into his 3rd book, Break on Through: Radical psychiatry and the American counterculture in which he examines the tumultuous 1970s in America with a focus "not just on the elite doctors and people in positions of power, but also wider societal trends." In addition to Break on Through, Richert has published A Prescription for Scandal: Conservatism, consumer choice, and the food and drug administration during the Reagan era and Strange Trips: Science culture, and the regulation of drugs. His fourth book, Cannabis: Global Histories, will be available later this year (2021). In this interview, we will discuss the radical landscape of American psychiatry in the 1970s, "therapeutic" and "non-therapeutic" drugs and how they are classified as such, and feminist critiques of psychiatric institutions.

This week we are sharing the audio taken from our recent psychiatric drug withdrawal town hall held on January 15th 2021. This was our initial, scene-setting discussion and the panelists are Adele Framer, also known as Alto Strata founder of surviving antidepressants, Luke Montagu, co-founder of the Council for Evidence-based Psychiatry, Swapnil Gupta, a psychiatrists with a specila interest in deprescribing and John Read, Professor of psychology and Chair of the International Institute for Psychiatric Drug Withdrawal. This series aims to explore what we do and don't know about safe withdrawal from antidepressants, antipsychotics, benzodiazepines and stimulants. We will seek to present and explore new understandings that are emerging from the professional and lived-experience communities. We will discuss the knowledge, skills and experience necessary to support those who may be having difficulty getting off psychiatric drugs. We will address questions of interest to both prescribers and patients alike. Our next even in the series will be held on March 12th 2021 and registration details will be available on Mad in America in early February.

Mad in America, in partnership with the Council for Evidence Based Psychiatry and the International Institute for Psychiatric Drug withdrawal is arranging a series of free to attend online town hall discussions on psychiatric drug withdrawal. We aim to explore what we do and don't know about safe withdrawal from antidepressants, antipsychotics, benzodiazepines and stimulants. We will discuss the knowledge, skills and experience necessary to support those who may be having difficulty getting off psychiatric drugs. By doing this we hope to stimulate further discussion between service users and prescribers. Our first discussion will be held on Friday January 15th at 10 AM Pacific time, 1 PM Eastern time and 6 PM GMT. The panellists for the first discussion are Adele Framer, founder of Surviving Antidepressants; Swapnil Gupta, a Board Member of the International Institute for Psychiatric Drug Withdrawal and a psychiatrist with a special interest in deprescribing; John Read, Professor of Psychology and Chair of the International Institute for Psychiatric Drug Withdrawal; and Luke Montagu, co-founder of the Council for Evidence-based Psychiatry and member of the NICE guideline committee for safe prescribing and withdrawal. To register for the first discussion, visit madinamerica.com and use the link at the bottom of the home page or click here: https://bit.ly/psych-drug-withdrawal We hope that these discussions will add to an increasingly detailed collection of knowledge and experiences that can inform prescribers when providing informed consent and when implementing gradual tapering regimes. We very much hope you can join us.

Thomas Teo is a Professor of Psychology in the Historical, Theoretical, and Critical Studies of Psychology Program at York University, Toronto, Canada. He has spent his 20+ year career challenging the status quo in academic psychology. His unique approach to research has been described as both critical and meta-psychological. He often takes the discipline of psychology itself, including its methods and assumptions, as the target of his analysis. He is currently the co-editor of the Review of General Psychology (Sage), editor of the Palgrave Studies in the Theory and History of Psychology, and co-editor of the Palgrave Studies in Indigenous Psychology. He is the former president of the International Society for Theoretical Psychology, of the American Psychological Association's Society of Theoretical and Philosophical Psychology (Division 24), and former chair of the History and Philosophy of Psychology Section of the Canadian Psychological Association. He has a research record with more than 200 academic publications and refereed conference presentations. In this interview, Teo expounds upon concepts covered in a recent Science News Article and explains what it means for him to be a critical psychologist. He outlines how, as he became disappointed with the general state of psychology in Western Europe and the Americas, he sought alternative approaches that could better account for how culture, society, and economics are entangled with psychology. This led him to look more closely at historical examples of fascism, as well as postcolonial authors, to better understand how the psychosocial dimensions of social power operate in the world today. As he explains, this has important implications for how we think about psychiatry, mental health, and disability. Teo concludes the interview by foreshadowing some of his future work, which will further build on his concept of subhumanism to examine how subjectivity is shaped by the premium placed on certain lives. In contrast, others are constructed as less-than-human under neoliberal capitalism.

Piers Gooding is a Mozilla Foundation fellow (2020) and researcher at the Melbourne Social Equity Institute at the University of Melbourne Law School. His main interests are disability law and policy, international human rights law, the law and politics of mental health, and empirical legal research. Gooding describes his scholarship as an interdisciplinary undertaking that blends theoretical inquiry with applied qualitative research at the local, national, and international levels. He has collaborated with the UN Special Rapporteur for the Rights of Persons with Disabilities and the World Psychiatric Association on recommendations for alternatives to coercion in mental health. He blogs at https://pgooding.substack.com/ and tweets at @p_gooding. In this interview, he discusses his journey pursuing a human rights agenda in mental health. We focus on his efforts to marry international human rights law and the work of disability rights committees to ensure that people with psychosocial disabilities are not left out. He then talks about his longstanding work to prevent coercion in mental health and its connection to the digital, data-driven direction taken by the field as a whole. He elaborates the regulatory and ethical issues he has uncovered in his research at the intersection of mental health services and data-driven technologies and gestures at emerging methods of "algorithmic accountability" for addressing some of these issues.

Jennifer White is one of the founders of the Critical Suicidology Network, a growing international network of scholars interested in exploring alternatives to biomedical approaches to suicide prevention. Critical suicidology brings together persons with lived experience, mental health professionals, researchers, and activists "to rethink what it means to study suicide and enact practices of suicide prevention in more diverse and creative, less psycho-centric and less depoliticized, ways." She is a Professor in the School of Child and Youth Care at the University of Victoria in British Columbia, Canada. She has practiced as a counselor, educator, researcher, and advocate. White served for seven years as the Director of the Suicide Prevention Center in the Department of Psychiatry at the University of British Columbia. She has written numerous articles and book chapters on suicide and self-harm and has co-authored two books: Child and youth care: Critical perspectives on pedagogy, practice and policy (2011), and Critical suicidology: Transforming suicide research and prevention for the 21st century (2016). Her current research focus centers itself around the contemporary discourse of youth suicide prevention, seeking alternatives to one-size-fits-all approaches. She is currently leading a Wise Practices for Life Promotion project funded by the First Nations and Inuit Health Branch (FNIHB) of Health Canada. This project seeks to curate a series of wise practices for promoting life based on what is already working and/or showing promise in First Nations communities across the country. She is also conducting a study with family counselors to learn more about the challenges and opportunities they face with youth suicide prevention and the organizational conditions that support them to be most effective in their work.