Fibromyalgia Podcast®

Tami Stackelhouse
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Nov 15, 2022 • 32min

Fibromyalgia Sleep

People with fibromyalgia are significantly more likely to experience a sleep disorder. On top of that, some particular issues tend to happen when it comes to sleep and fibromyalgia. Last week Tami and her friend, sleep expert Sovann Pen, talked about the importance of sleep for your healing journey and how you can get better sleep. In today's special episode, Tami dives deeper into the specifics of fibro sleep, from research studies to books, supplement recommendations, and more. In this episode, Tami talks about what research shows about the connection between poor sleep and pain, why not getting good sleep can make you feel more hungry and less satisfied after eating, the three ways sleep is different in people with fibromyalgia, different ways fibromyalgia impacts sleep, diagnosing fibromyalgia looking at the alpha brain wave/delta brain wave ratio, the 45% higher incidence of sleep disorders with fibromyalgia, why getting a sleep study done is probably a good idea, medications and supplements that can help you to get more and better sleep, causes and treatment of restless leg syndrome or periodic limb movement disorder (PLMD), sleep is essential for healing, things that can help you to fall asleep, lowering the overactive fight or flight response, increasing the amount of deep sleep you're getting, practices you can try to lower your stress response before bed, and more. The information Tami shares in this episode is just the tip of the iceberg. If you're interested in learning more, consider joining us for our next class of the Certified Fibromyalgia Advisor® training program, where she goes much deeper into sleep and many other topics specific to fibromyalgia. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
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Nov 8, 2022 • 59min

Sleep Better with Sovann Pen

Unrefreshing sleep is one of the hallmarks of fibromyalgia, and it's hard to face the day when you wake up feeling depleted. With Fibromyalgia, we find three significant sleep issues that we must address: struggle with getting to sleep, problems with staying asleep, and calming the overactive fight or flight so we can get restful sleep. Sleep is essential for having the mental and emotional energy to do the things we need to do to feel better, and Tami believes that her fibromyalgia would not be in remission without tackling her sleep issues. Unfortunately, there's no one-size-fits-all solution; everyone has to find the right recipe for their sleep. Today's guest, Sovann Pen, joins Tami to talk about why sleep is vital to our overall health and how you can get better sleep. In this conversation, Sovann and Tami discuss Sovann's 25-year sleep career, how different people are affected by poor sleep quality, thinking about how your life could be better with better sleep, don't assume your symptoms are solely due to fibromyalgia, how not getting enough sleep leaves us vulnerable to burnout, the high correlation between fibromyalgia and sleep apnea, the four stages of sleep, why people with fibromyalgia often struggle with getting restful sleep, Tami's experience with sleep studies, what a sleep study entails, the three main sleep issues people with fibromyalgia experience, why you need to start sleep hygiene as soon as you wake up, when to consider meeting with a sleep specialist, the right place for sleep aids and medication for sleeping, when to take melatonin, figuring out what's waking you up in the night, negative sleep thoughts, social media has a negative effect on many people's sleep, digging deeper into the symptoms to address the core problem, how you can use the Wellness Wheel, Sovann's tips for making friends with your CPAP machine, the need to slow down and take care of yourself, and more. Be sure to tune in to next week's special bonus episode, where Tami will share fibro-specific sleep information, including studies, supplements, and topics she teaches in her Certified Fibromyalgia Advisor™ class. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Oct 25, 2022 • 43min

Grief and Fibromyalgia with Pat Sheveland

As an eternal optimist, Tami likes to keep this podcast positive, often focusing on ways you can feel better with fibromyalgia. But you can't talk about fibromyalgia without exploring the darker side of things, like the grief many of us experience. Grief affects all of us physically, emotionally, and energetically. Fibromyalgia can often seem like an endless taking away of things, from living in a body that doesn't function the way it used to, to the loss of our jobs, family, or friends who don't understand. It's natural to experience grief over the way life used to be. Today Tami is happy to share a conversation she's been looking forward to for months: her interview with grief coach Pat Sheveland, where they explore the intersection of grief and fibromyalgia. In this episode, Tami and Pat talk about how grief often shows up for those of us with fibromyalgia, Pat's journey to grief coaching, the experience of writing four books, how grief affects us physically, the science of the grieving brain, why our fibromyalgia symptoms are amplified by grief, defining grief, the many different ways grief and loss show up in our lives, the grief of losing your life before fibromyalgia, the fallout that happens in various aspects of our lives when we have fibromyalgia, how to distinguish between sadness and grief, finding a safe space to talk about your grief, there is no timeline for grief, learning to coexist with grief, Pat's recommendations for supporting yourself through grief, getting rid of the stigma of seeking help with managing grief, the benefits of working with a trained grief professional instead of relying on family or friends only, next steps for you if you're ready for support with your grief, Pat's beautiful message to you, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Oct 11, 2022 • 49min

Chronic Illness At Work with Julie Hamilton

If you're struggling right now with working with fibromyalgia or other chronic illnesses, there is hope. Whether you're an employer or an employee, today's interview will be fabulous for you. Tami is thrilled to share this interview with Certified Fibromyalgia Coach® Julie Hamilton about her new book, Chronic Illness at Work. One of the most important things about this book is that it not only helps those of us with chronic illnesses but shows companies that it's in their best interest to support their employees. In this episode, Tami and Julie talk about Julie's fibromyalgia diagnosis, becoming a Certified Fibromyalgia Coach®, the inspiration behind Chronic Illness at Work, how supporting good employees benefits everyone involved, Julie's favorite parts of writing her book, what it's like writing a book with fibromyalgia, the deep emotions that came up when the book was published, how Chronic Illness at Work helps HR professionals and employers to support staff with chronic illnesses, why people working with chronic illnesses can also benefit from Chronic Illness at Work, the importance of ergonomics, exploring options for job accommodations, key facts on the Family Medical Leave Act (FMLA) and Job Accommodations Network, how Julie works with employees and employers, Julie's passion for helping other people with chronic illnesses, how you can get a free copy of Chronic Illness at Work, success stories from Julie's clients, benefits of working with a Certified Fibromyalgia Coach®, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Sep 27, 2022 • 58min

Addiction, Dependency, and Withdrawal with Dr. Chelsea Liebowitz

After our last Ask the Coach episode, where Tami covered the three FDA-approved medications for fibromyalgia, we received many follow-up questions from listeners. Questions like: What's the difference between being addicted and being physically dependent? How can you safely come off your medication? When is it time to reduce or discontinue certain medications? In today's episode, Tami is excited to be joined by Doctor of Pharmacy Chelsea Liebowitz, who's here to clear up all these questions and more. As a pain patient herself, Chelsea spent years seeking answers for her chronic pain, and she knows your pharmacist's vital role as part of your healthcare team. In their conversation, Chelsea and Tami talk about what it was like growing up with chronic pain and the medical gaslighting Chelsea experienced, how frustration with a lack of answers led Chelsea on a journey to figure it out herself, the discovery that copper toxicity was behind a lot of her symptoms, it requires determination and grit for people with chronic illnesses to get answers, Chelsea's training in pharmacy, how pharmacists help patients, why you should build a relationship with a small independent pharmacy, the difference between addiction and physical dependence, most medication is not curative - it helps you manage your symptoms, viewing medicine as a tool to help you accomplish what you want, Chelsea's tips for tapering off of your medications, how to know when it's time to taper off your medicines, how coaches can help you to heal medical trauma, removing the stigma of withdrawal, distinguishing between temporary withdrawal symptoms and still needing your medication, empowering yourself around potential side effects, Chelsea's experience with medical PTSD, things doctors say and what they really mean, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Sep 13, 2022 • 48min

Conditions Related to Fibromyalgia

Many of the symptoms people blame on fibromyalgia are actually due to coexisting conditions. Too many people go too long with the wrong diagnosis, taking inappropriate medications, and following unnecessary protocols because their provider didn't identify the correct cause. This topic came up a lot in the last cohort of Certified Fibromyalgia Advisor® training. As we went through the program, the students had many lightbulb moments and realized much more was happening than just fibromyalgia. By getting to know fibromyalgia deeply, it becomes a lot easier to spot when those symptoms are from something else. After living with fibromyalgia since 2007 and being a coach for over ten years, Tami often picks up clues in client conversations that indicate something else is going on. Today, she's sharing a brief overview of some of the most common conditions that tend to get overlooked after someone has been diagnosed with fibromyalgia. In this episode, Tami talks about how she spots the clues that something else is at play, the problem with the lack of training about fibromyalgia in medical school, symptoms of other conditions often get blamed on fibromyalgia, why it's critical to identify and address the root cause of your symptoms correctly, clues she typically sees that suggest Ehlers-Danlos syndromes (EDS), respiratory issues, Sjogren's syndrome, sleep apnea, thyroid conditions, lupus, mast cell activation syndrome (MCAS), multiple sclerosis (MS), Parkinson's disease, neuropathy, and other common conditions we see alongside fibromyalgia, why testing TSH alone isn't enough to assess your thyroid function, what you need to know about chronic fatigue syndrome/ME and fibromyalgia, viruses and bacterial infections that have similar symptoms to fibromyalgia, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
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Aug 30, 2022 • 36min

FDA-Approved Fibromyalgia Medications: Ask the Coach

"I'd like to try Lyrica, but I worry about if I ever had to come off. Should I try it?" For today's Ask The Coach episode, I'm answering this question sent in by Sarah in the UK. When treating fibromyalgia, we have to attack it from two sides. The first is addressing the fibromyalgia itself and the amplification of pain signals; the second is treating the pain that your fibromyalgia amplifies. In most cases, fibromyalgia medications are more helpful than harmful and can be a valuable tool to break the pain cycle. That said, the question of medications is complex and impossible to cover in detail in a podcast episode. Tami's primary focus for this answer will be on fibromyalgia medications that address the amplification of pain signals, how they work, and the most important aspects you'll want to consider. In this episode, Tami discusses the FDA-approved medications for fibromyalgia, the fact that no single drug is capable of managing all fibromyalgia symptoms, Tami's two-pronged approach to treating fibromyalgia, the main goal of fibromyalgia medications, Lyrica's history and previous versions, how Lyrica and Neurontin work to reduce our experience of our pain, common side effects of Lyrica, physical dependency versus addiction, how serotonin and norepinephrine affect pain levels, why the anti-depressants Savella and Cymbalta also help to address fibromyalgia symptoms, the mode of action of other anti-depressants that are sometimes prescribed for fibromyalgia, Cymbalta is known for being challenging to come off of, the importance of very slowly weaning off of medications, the gradual process Tami used when she was ready to come off of her medications, why we hear more stories about negative experiences, the fact that there's no morality in taking medication, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Aug 16, 2022 • 58min

Adventures Are Still Possible with Melissa Swanson

So often with fibromyalgia, we're given negative news: there's no cure, your life has changed, and the list continues. Once again, we're on a mission to break that trend and show you that there are still adventures for you. Tami is excited to be joined by Melissa Swanson to share the recent epic hiking adventure that, not too long ago, neither of them would have thought possible. Melissa and Tami met about eight years ago at the Leaders Against Pain Scholarship Training in 2014; since then, so much has changed. In this episode, Melissa and Tami share what their fibromyalgia symptoms were like when they met, what it was like to have their sole focus be on getting through the day, why Melissa needed to wear sunglasses all the time, how Melissa's bad knee acted as a trigger for a lot of other pain, the anxiety around having surgery and the potential impact it might have on your fibro, Melissa's amazing recovery following total knee replacement surgery, the significant improvements Melissa experienced after joining the Certified Fibromyalgia Advisor® program, Tami and Melissa's recent hiking adventure to the middle of nowhere and navigating "steep but manageable trails," the surprisingly light after-effects of Tami and Melissa's adventure, what Tami and Melissa did to boost their recovery, Tami and Melissa's recognition that they are doing better than they realized, the shifts that made the most significant differences on Melissa's fibro journey, and more. After their adventure, Tami and Melissa were blown away by what they could actually accomplish now with their fibromyalgia. We hope their story and journey will inspire you. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Aug 2, 2022 • 52min

Fibromyalgia Stories of Hope and Healing #5

There's so much hope that comes from hearing the healing stories of other people on the fibromyalgia journey. Often, that's where we first recognize that a better future is possible for us. Today in our fifth installment of Stories of Hope and Healing, we're sharing the inspiring stories of four recent graduates of the Certified Fibromyalgia Advisor® program. During these conversations, you'll hear Tami and the graduates refer to their Fibromyalgia Impact Questionnaire score (FIQ), which measures the impact of fibromyalgia symptoms on a scale of zero to 100, with lower scores referring to milder symptoms. When this tool was created, the average fibro patient's score was around 58. In future studies, researchers found that the three FDA-approved fibro medications typically gave about 20% improvement, acceptance and commitment therapy showed around 27% improvement, and general health coaching brought around 35% improvement after a year. On average, our students improve their scores by about 50%. For this cohort of graduates, the average improvement after our 3-month program was 62%, and in the individual interviews, you'll hear each person's journey. In this episode, our graduates share how they've improved their fibromyalgia over the last few months, the considerable role mental health plays in their healing journey, why even coaches need coaches, a game-changing supplement to transform your sleep, the significant shift that comes from slowing down and being more intentional, why it's necessary to dig deeper to figure out if all your symptoms are from fibromyalgia, the key insights they found during the program, and more. We hope this episode inspires you, encourages you, and simply shows you that it is possible to feel better than you do right now. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Jul 19, 2022 • 28min

What If It Isn't Fibromyalgia?

Don't blame everything on your fibromyalgia. Your pain, fatigue, sleep issues, and brain fog might not be from your fibromyalgia. We need to dig deeper. Tami encountered this topic a lot in the last few months of the Certified Fibromyalgia Advisor® training program. We're not saying you don't have fibromyalgia - what we mean is, sometimes symptoms can be caused by something else in addition to or instead of fibromyalgia. Why does it matter? Assuming that fibromyalgia is the blanket reason behind every symptom, you might be missing out on opportunities for healing. By finding the true source of your symptoms, you'll be able to get the right treatment to help you. In this episode, Tami is talking about the common areas outside of fibromyalgia that might be causing similar symptoms. She shares why you should learn to read your labs, what it might mean if none of the typical medications are helping, common symptoms of mast cell activation syndrome (MCAS), the huge difference a CPAP machine made for her, why Tami believes myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is separate from fibromyalgia, the importance of testing for chronic infections, why advocating for yourself is essential, how a Certified Fibromyalgia Coach® can help you on your fibro journey, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.

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