Fibromyalgia Podcast®

Tami Stackelhouse
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Jun 20, 2023 • 43min

New Medications for Fibromyalgia w/ Dr. Seth Lederman: Ask the Coach

One of the questions Tami gets most often is, "When are we going to have new fibromyalgia treatment options?" With only three FDA-approved fibromyalgia medications, many of us are on the alert for new options to address our symptoms better. To answer that question, Tami invited Dr. Seth Lederman, CEO and founder of Tonix, to talk about the fibromyalgia medication currently in phase three trials, TNX-102 SL. Dr. Lederman has dedicated his career to fibromyalgia research and has worked on this drug for almost 25 years. Today he's sharing all the details about how TNX-102 SL could help fibromyalgia patients and walking us through the process of developing a new medication. In this conversation, Tami and Dr. Lederman talk about the process of creating a new medication and the FDA approval process, the significant challenges in the medication creation process, TNX-102 SL - the new fibromyalgia medication Dr. Lederman has been working on for almost 25 years, how TNX-102 SL is different and improved over Flexeril, the importance of improving sleep quality for fibromyalgia patients, the benefits of improved sleep quality, unrefreshing sleep in fibromyalgia patients and how it relates to the pain perception system, the current phase three trial of TNX-102 SL and how you can find out more, next steps after the successful completion the current study, preliminary results showing the positive effects of TNX-102 SL on the quality of life of fibromyalgia patients, the overlap between long COVID and fibromyalgia, the varied factors that can lead to the development of fibromyalgia, a new drug under development for depression that could also have activity in fibromyalgia, positive progress in fibromyalgia research and treatment, Dr. Lederman's message for you, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Jun 6, 2023 • 1h 38min

Replay: Cutting Edge Fibro Research w/ Dr. Jarred Younger

An objective test for fibromyalgia will change everything. As a researcher, Dr. Jarred Younger's mission to figure out fibromyalgia has led him to study neuroinflammation as a primary suspect. "What I think is happening in fibro is an overly robust immune response, an abnormal reaction to low level, daily insults to the immune system." Having seen so much suffering with no effective treatment options, Dr. Younger has become driven to solve the mystery of fibromyalgia by scientifically uncovering the root cause. Key Points Could fibromyalgia be the result of inflammation in the brain? Find out what cutting edge science is discovering. A new tool for scanning and imaging the brain may help us finally pinpoint the pathology of fibromyalgia. The discovery of low-dose naltrexone as a treatment option occurred as Dr. Younger was testing his hypothesis on inflammation in the brain. Correcting inflammation in the brain can begin with simple (albeit difficult!) dietary and lifestyle changes. The hardest thing about running studies is getting willing participants — but that's how we make the scientific advancement. Advocacy is having a tremendous effect on fibromyalgia research. It actually improves the scientist's ability to create new information. About Dr. Jarred Younger Dr. Jarred Younger is the director of the neuroinflammation Pain and Fatigue Laboratory at the University of Alabama in Birmingham. He is currently funded by the National Institute of Health to study new techniques for diagnosing and treating neuroinflammation, which is inflammation in the brain and nervous system. Dr. Younger completed postdoctoral fellowships at Arizona State University and Stanford University School of Medicine. Dr. Younger's goal is to end the chronic pain and fatigue that is caused by inflammation in the brain. Links & Resources FibromyalgiaPodcast.com is the digital companion to this audio magazine, where you can find full show notes, links to the studies referenced in this episode, submit your questions for Tami Stackelhouse, and schedule a free consultation with a Fibromyalgia Coach. Get a free copy of Tami's book, Take Back Your Life: Find Hope and Freedom From Fibromyalgia Symptoms and Pain at FibromyalgiaPodcast.com/books The Teal Pumpkin Project American Fibromyalgia Syndrome Association ClinicalTrials.gov Report.NIH.gov UpToDate.com Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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May 23, 2023 • 1h 1min

Multiple Chemical Sensitivity: When Typical Treatments Fail with Gisèle McDiarmid

With the lack of awareness and education about fibromyalgia, many of us go through years of chronic health issues without finding answers. You might even find that the medications, supplements, and treatments that are supposed to help you to get better are making you worse. Today's guest, Gisèle McDiarmid, went through all of that, and today she's sharing what she uncovered that made all the difference. While her health deteriorated over 20 years, Gisèle received multiple diagnoses and treatment options, but nothing worked. So what do you do when everything makes you feel worse? In this conversation, Gisèle and Tami talk about Gisèle's life as a nurse, mother, and caregiver, managing her Hashimoto's diagnosis, her deteriorating health and experience with injuries, chronic infections and allergic reactions, severe reactions to flu shots and what she learned about her ability to tolerate vaccines, why fibromyalgia awareness and education are so important, Gisèle's health crash which turned out to be a massive fibro flare, the long journey to receiving her fibromyalgia diagnosis, her struggles with conventional medications and natural treatments, unlearning her disconnected body mindset, the power of tuning in and recognizing that you and your body are on the same side, learning about multiple chemical and environmental sensitivity, common triggers of multiple chemical sensitivity (MCS), why we need to become aware of our individual body burdens and all the things we're exposed to, the increase in MCS diagnosis worldwide, why green initiatives matter, resources you can use if you think you may have MCS, Gisèle's message for you, and more. If it feels like nothing is working for you, Gisèle and Tami hope that her story gives you some new ideas of things to try. Always remember that it doesn't matter if other people don't believe you as long as you know what you're going through is real. Even when we have a chronic illness, our life isn't over. Gisèle went from a crisis to living a full life again, and you can do it too. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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May 9, 2023 • 56min

Invisible: The Documentary That Makes Fibromyalgia Visible with Director Nick Demos

Everyone with fibromyalgia understands how challenging it can be to explain the invisible pain and fatigue that comes with it. Despite affecting millions of people, there's still a lack of understanding and awareness about fibromyalgia. That's where the documentary "Invisible" comes in. Through personal stories and expert interviews, "Invisible" explores the impact of fibromyalgia on people's lives and the challenges caused by the lack of understanding and research. For today's episode, filmmaker Nick Demos joins Tami to discuss his feature documentary on fibromyalgia, Invisible. Nick and Tami have been waiting to do this interview ever since they began working on the film eight years ago. Not wanting to give away the ending before people could watch, a lot had to be kept secret during the production process. Now, they finally get to talk about it publicly. In this conversation, Nick and Tami talk about how Nick became involved with the making of Invisible, its evolution into a documentary about the fibromyalgia community, challenges with finding men when casting the film, how the perception of fibro as a woman's disease has contributed to the lack of research and understanding, the difficulty balancing creating a piece of art with making a film that would educate and inspire action, Nick's on-camera life-changing diagnosis, the unfairness of being discriminated against for something outside your control, why this film is vital to the fibro community, Tami's experience being a part of the film, why it was especially tricky to visually explore stories about an invisible illness, why community is essential, why Tami and Nick consider some aspects of fibromyalgia as a gift, what most surprised Nick while making the film, the truth behind the lack of research on fibromyalgia, upcoming premiere events, how Nick manages his fibromyalgia, Nick's message for you, and more. Invisible is the film that the fibro community has wanted and needed, and we know you'll love it. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Apr 25, 2023 • 38min

What To Trust Online... AI and ChatGPT

With the sheer volume of information online, it can be challenging to know which sources are legitimate. Since ChatGPT's launch in December 2022, we must be even more careful. While it's an incredibly useful tool for increasing efficiency for writing blog posts, generating book outlines, and more, the problem lies with the fact that it will create a response to whatever you prompt, regardless of the facts, potentially spreading misleading information. Since many of us search for information about our health online, it's crucial that we know that the sources we turn to are reliable. For today's episode, Tami shares tips to help you understand who you can trust online. Tami talks about what you need to know about ChatGPT and information generated by AI, why adding the human element is critical, creative, and valuable ways ChatGPT is being used in different industries, how to figure out whether an information source is trustworthy, recognizing that the title of "doctor" doesn't always equate to expert, website red flags, why it's worth it to take a closer look at the underlying data and sources, tips on how to figure out which studies are valid, what you can learn by cross-referencing articles, being wary of content that's overselling or over-generalized, building a list of trusted sources, how to use AI effectively, and more. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Apr 11, 2023 • 59min

When Life Implodes with Dr. Ginevra Liptan

Fibromyalgia can feel like an endless taking away of things. Whether you're newly diagnosed and struggling to find your way, or you think you have it all figured out, boom, life happens. We've all had hopes and dreams that ultimately died or were taken away. Living your best life doesn't mean avoiding anything terrible happening - that's impossible. Instead, the key is knowing how to take care of yourself when life implodes. For this episode, Tami interviewed Dr. Ginevra Liptan, fibromyalgia specialist and author of The Fibro Manual and the Fibro Food Formula. While in medical school, Dr. Ginevra was diagnosed with fibromyalgia and has since devoted her career to helping other fibro patients. With all her expertise, it's easy to assume her fibro would be permanently under control, but none of us are immune from life's ups and downs. In this conversation, Tami and Dr. Ginevra discuss how Dr. Ginevra's life fell apart during the pandemic, dealing with the worst fibro flare since she first got sick, the power of reconnecting with your deeper purpose, Dr. Ginevra's drive to help people with fibromyalgia, giving yourself the grace to slowly build the pattern of accomplishing things, figuring out who you are after your diagnosis, finding meaning and direction from the pain, how Frida Kahlo has inspired Dr. Ginevra, why therapy was life-changing after her divorce, how to separate your vision from your purpose, what it was like for Dr. Ginevra to lose the Freedom Center so close to getting her divorce, the struggle to find a new identity after a life implosion, why Dr. Ginevra doesn't identify with the typical Western medical doctor-patient dynamic, the terrible experience Dr. Ginevra had when taking her son to the doctor to investigate potential fibro symptoms, her work to help other doctors improve their standard of care for fibro patients, how you can help your doctor help you, why so many primary care doctors are burned out, the magic combination of a fibromyalgia health coach with a fibromyalgia doctor, Dr. Ginevra's message for anyone dealign with a life implosion, and more. If you're struggling on your fibro journey, Tami hopes today's interview will help you feel less alone. Be kind to yourself, take advantage of every available resource, and take small steps toward your goals. Brighter days are possible, and there can be a silver lining to the clouds you face. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Mar 28, 2023 • 54min

Talk To Your Doctor Effectively with Dr. Andrea Chadwick

Having good conversations with doctors can be difficult for many fibromyalgia patients. Whether it's dealing with fibro fog or the fear of being labeled as a drug seeker, we often leave these interactions without feeling understood or confident in the action plan. So how do we have better conversations with our doctors? By finding the right practitioner and arming yourself with tools to support you during your appointment. Today Tami is joined by Dr. Andrea Chadwick to talk about current fibromyalgia research, the hallmarks of a good doctor, and simple strategies to get the most out of your doctor visits. In this episode, Tami and Dr. Chadwick discuss why she chose to work with chronic pain, the mission behind Dr. Chadwick's Fibromyalgia and Centralized Pain Exploration Lab, the overlap between fibro and other chronic pain conditions, why it's essential to tell our stories, research into how and why heat therapy helps with pain, advocacy for fibromyalgia research, the value of recording your pain journey and details of interventions you've tried, the types of conversations Dr. Chadwick has with new patients, figuring out your goals for your therapeutic relationship, how you can create space for grace, finding the version of you that works best in your fibromyalgia body, getting comfortable with moving on from a doctor who isn't a good fit, how Dr. Chadwick became involved wth Swing Care and what you can expect from their virtual clinic, the advantages of telehealth, how you can register your interest in Swing Care expanding to serve your area, Dr. Chadwick's message for people struggling to find good doctors, bonus resources you can use to make doctor visits easier, and more. Dr. Chadwick wants you to know that there's hope out there, and you can advocate for yourself to get better care. Getting better with fibromyalgia is a journey and a process. Trust the process, and more importantly, trust yourself. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Mar 21, 2023 • 30min

Special #4 - How Do You Become a Fibro Coach?

Welcome to the final episode of our special Be a Coach series. So far, I've answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgia Coach® is, the difference between the two, who makes a good Certified Fibromyalgia Coach® and who is better suited to be a Certified Fibromyalgia Advisor®, what you need and don't need to become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one. In this final installment, I'm digging into the nuts and bolts of how you can become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®; including the exact steps you need to take. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
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Mar 14, 2023 • 46min

Step Into Your Purpose with Katy Suik

"If it's in you, it's for you." - Katy Suik With fibromyalgia, we can't do things the way we used to. That can trigger a loss of purpose and identity. "Who am I when I can't do this? Can I still contribute?" While we tend to think of our purpose as a single thing that will make our lives perfect, the reality is much more expansive. Purpose is not external to you. It's about tuning into yourself and aligning with what's already in you. When you lean into who you are, what's meant for you will find you. Today Tami is joined by Certified Professional Coach Katy Suik to talk about uncovering your higher purpose. Katy believes we are all born with the seeds of purpose within us, and it's our job to nurture those seeds to help make the world a better place. In this episode, Tami and Katy talk about how Katy's quest to find herself led to developing a career helping others overcome their limitations and unpacking their purpose, the gifts that come through our experiences, recognizing that purpose is multifaceted, the connection between identity and purpose, reclaiming your power utilizing Katy's pebble in a pond model, the danger of putting too much emphasis on what you do versus who you are, the difference between egotism and self-love, what you can expect from Katy's upcoming free Entrepreneurial Purpose & Prosperity Masterclass, why many of us get stuck in a stagnant place, the three pillars that will be covered in the masterclass, the power of seeing real-life examples of people living in their purpose, what to do if you feel like you're made for something more, Tami's Joy List activity, shutting down your inner critic, why it's helpful to have a coach on the journey with you, Katy's message for you, and more. When we feel worthy and love ourselves in a celebratory way, we can bring so much wonderfulness to this world. Whatever the circumstances in your life, you get to have the life of your dreams. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
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Mar 7, 2023 • 33min

Special #3 - Why Should You Consider Being a Coach?

Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series was all about who makes a good coach and who is better suited to be an advisor. I also covered what you need and don't need to become a Certified Fibromyalgia Coach®. In this episode, we're taking a deeper look at why someone would want to become a Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one. Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.

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