While We're Waiting® - Hope After Child Loss

Even as we enjoyed our family time over the Thanksgiving holiday, we found ourselves looking ahead to Monday when Hannah would finally get to start her new chemotherapy treatments.   The reprieve from treatments had been wonderful, and we were so glad Hannah was finally feeling more like herself, but we were really beginning to feel the urgency to get back to fighting this cancer.  Every day that passed without treatment felt like an opportunity for the cancer to gain a deeper foothold in her brain and spine.Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

As we stepped through our holiday traditions, Brad and I were fully cognizant that this could be the last time we did these things together as a family of four.  My emails gave no indication of what an excruciatingly difficult time this was for us as Hannah's parents.  We were beginning to see daily indications that she was already leaving us, little by little.  They were small things ... nothing that a casual observer would see ... nothing we could even specifically identify ... but the signs were there nonetheless.  All we could do was savor every moment of our time together as a family, lean in, and trust God for the future.Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

Welcome to episode #231, which is a continuation of my conversation with Lynda Wake, who is a wife, mom (or “mum” as she would say it), and grandmother.  She is also the author of two amazing devotional books, “Heartbreakingly Beautiful” and “Waiting Well With Jesus”, and the founder of the BE Blessings ministry, which you’ll hear more about today.    Last week, Lyn shared the story of how her daughter Bethany was diagnosed with inoperable terminal brain cancer at the tender age of fifteen. Today we get deeper into her story, including her advice for newly bereaved parents, what she’s learned about the character of God, and how she’s experienced His faithfulness over the past thirteen years. We’re also going to have our first-ever giveaway, so be sure to listen in for that!  We will pick up our conversation right where we left off last week.GIVEAWAY - (EDIT - The book has been claimed!)  I have ONE copy of Lynda's 52-week devotional "Heartbreakingly Beautiful" to give away.  I will mail it to the first person to email me at jill@whilewerewaiting.org.    To purchase your own copy of "Waiting Well with Jesus" visit your local Christian bookstore and ask them to order it ... or you can order one on Amazon HERE: Click HERE to learn more about the Be Blessings ministry!  I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

We returned to the Hem/Onc clinic at Arkansas Children's Hospital on Monday morning, fully prepared for Hannah to be admitted so she could finally start her new chemotherapy treatments.  But when her bloodwork showed a platelet level of 3,000 (normal is over 150,000), we knew we would not be starting that day.  With a platelet count that low, she was at risk for excessive bleeding ... and excessive bleeding is a potential side effect of Avastin, the chemotherapy drug she would be receiving.  Her red blood counts were also quite low, so instead of chemo, Hannah spent the day receiving transfusions of platelets and blood.Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

Though Hannah's ANC was rising, she was technically still in isolation due to her low blood counts.  In spite of this, we made the decision to attend one of Bethany's basketball games together as a family.  We sat by ourselves in an empty area of the bleachers.  Several well-wishers came by to speak to Hannah, and that was great, but we didn't allow them to come within more than a few feet of her.  We joked that we were her "secret service agents."  She cheered for her sister, enthusiastically consumed a Frito pie, and enjoyed a few moments of near-normalcy that evening.Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

Lynda Wake and her husband have served with Wycliffe Bible Translators since 1998, and currently reside in Melbourne, Australia.  She is a grandmother of two and a mom of four, including her daughter Bethany Joy who lived her brief life to the max!  She is the author of two devotional books, “Heartbreakingly Beautiful” and “Waiting Well with Jesus”, and the founder of BE Blessings ministry.  Lyn will be my guest over the next two episodes as she shares God’s faithfulness in her journey with Bethany, which is remarkably similar to my own.  I believe you will be blessed by our conversation today.  To get your own copy of "Waiting Well with Jesus" visit your local Christian bookstore and ask them to order it ... or you can order one on Amazon HERE:  Click HERE to learn more about the Be Blessings ministry!  I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

Hannah's Facebook status from sixteen years ago today was this ... "Hannah is back from the hospital for the second time in 2 weeks but feeling great!"And an excerpt my email ... I wanted to spend a few minutes talking about Hannah in my update today. I don't usually say much about her personally, because she is a very private person and has been somewhat uncomfortable with so much attention focused on her over the past several months. However, after spending 24 hours a day with her for most of the past two weeks, there are some observations I'd really like to make. Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

So after being told we would be in the hospital a few more days ... Boom, just like that, they were telling us we would be heading home tomorrow.  A welcome disruption to our schedule for once!  As long as Hannah's counts continued their upward trend, we would be busting out of the hospital soon and we couldn't have been more pleased!Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

My name is Jill Sullivan ... and I have a calendar problem.  I like calendars.  A lot.  I love filling in all the little boxes with appointments and special dates and activities.  (Not that I want to do all the activities -- as an introvert, I enjoy writing them down much more than actually doing them, ha!)  I even keep my calendars from year to year ... in fact, I still have my planner from this week in November 2008.   Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org 

Hospital life is strange.  You would think that the doctors and nurses want the sick person to rest ... but no ... you would think wrongly.  All through the day -- and all through the night -- there are blood pressure checks, antibiotic infusions, and temperature measurements.  There are even people who come in and clean the room during the night -- they flip on the lights, sweep the floor, bang the trash cans around, etc.  And of course, there are the beeping IV monitors when a little air gets in the line.  But the strangest thing Hannah was asked to do was climb out of bed at some wee hour of the morning (every morning) and stand on a scale so they could check her weight.  I never could figure out why it was necessary to do that while the rest of the world was sleeping.Thank you for joining me for another bonus episode of the While We're Waiting podcast in this year-long series in which I share our family’s experiences as our teenage daughter Hannah battled glioblastoma brain cancer from February 2008 through February 2009.  My desire is to process through the events of those twelve months with the perspective that 16 years has brought … and point listeners to hope in Jesus along the way.I would love to hear your thoughts on the show. Click here to send me a message! (Though I read every message, I am unable to respond through this format.) ** IMPORTANT** - All views expressed by guests on this podcast are theirs alone, and may not represent the Statement of Faith and Statement of Beliefs of the While We're Waiting ministry.  We'd love for you to connect with us here at While We're Waiting! Click HERE to visit our website and learn about our free While We're Waiting Weekends for bereaved parentsClick HERE to learn more about our network of While We're Waiting support groups all across the country. Click HERE to subscribe to our YouTube channelClick HERE to follow our public Facebook pageClick HERE to follow us on Instagram Click HERE to follow us on Twitter Click HERE to make a tax-deductible donation to the While We're Waiting ministryContact Jill by email at:  jill@whilewerewaiting.org