Will Greene
Board member of the Foundation for Prader-Willi Research and caregiver-advocate whose family experience with Prader-Willi syndrome drives his work in rare disease research and patient advocacy.
Best podcasts with Will Greene
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Feb 26, 2026 • 1h 10min
'Rare' diseases: 1 billion reasons to care
Soraya Bekkali, SVP at Alexion/AZ who builds global rare‑disease partnerships; Alexandra Heumber, CEO of Rare Diseases International and global advocate; Will Greene, caregiver-advocate and FPWR board member driven by family experience. They discuss why rare diseases affect millions, the WHO resolution and national action plans, the power of better data and registries, and how research fuels medical innovation.
