Soraya Bekkali
Senior Vice President at Alexion, AstraZeneca Rare Disease responsible for international operations, partnering with patient groups and stakeholders to develop and deliver therapies for rare disease patients worldwide.
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Feb 26, 2026 • 1h 10min
'Rare' diseases: 1 billion reasons to care
Soraya Bekkali, SVP at Alexion/AZ who builds global rare‑disease partnerships; Alexandra Heumber, CEO of Rare Diseases International and global advocate; Will Greene, caregiver-advocate and FPWR board member driven by family experience. They discuss why rare diseases affect millions, the WHO resolution and national action plans, the power of better data and registries, and how research fuels medical innovation.
