Lili Milani
Head of the Estonian National Biobank, leading the volunteer-based population biobank that integrates genotypes with national health records and returns results to participants for research and public-health applications.
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Sep 20, 2024 • 32min
Estonia's biobank: Is this the first large-scale personalized medicine initiative?
Neil Ward, VP of EMEA at PacBio, explains long-read sequencing and its role in high-quality genomes. Professor Lili Milani, head of the Estonian National Biobank, leads a volunteer-based program linking genetics with national health records. They discuss using population genomics for early detection, pharmacogenetics, privacy safeguards, scaling to whole-population sequencing, and how this model could be replicated elsewhere.
