Lauren Holder
Patient advocate, caregiver, and host/producer of the Help for HD podcast who is living with Huntington's disease and speaks about community perspectives and urgency for treatments.
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Jan 29, 2026 • 42min
386: The high stakes for Huntington's patients
Lauren Holder, a caregiver, advocate, and host of Help for HD living with Huntington’s disease, speaks about the community’s reaction to UniQure’s gene therapy news. She discusses regulatory reversals, the push to petition the FDA, and the high stakes for access and mental-health fallout. The conversation centers on trial design debates and urgent planning for treatment pathways.
