Alexandra Heumber
CEO of Rare Diseases International who leads global advocacy for people living with rare diseases and coordinated efforts with governments and international organizations on policy and the WHO resolution.
Best podcasts with Alexandra Heumber
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Feb 26, 2026 • 1h 10min
'Rare' diseases: 1 billion reasons to care
Soraya Bekkali, SVP at Alexion/AZ who builds global rare‑disease partnerships; Alexandra Heumber, CEO of Rare Diseases International and global advocate; Will Greene, caregiver-advocate and FPWR board member driven by family experience. They discuss why rare diseases affect millions, the WHO resolution and national action plans, the power of better data and registries, and how research fuels medical innovation.
