Adam Anderson
Florida state representative and rare disease advocate who lost his son Drew to Tay-Sachs and authored the Sunshine Genetics Act to expand newborn whole genome sequencing and pediatric rare disease research.
Best podcasts with Adam Anderson
Ranked by the Snipd community
Feb 10, 2026 • 42min
The Path with Becky Quick: Unlocking the Rare Genetic Code 2/10/26
Adam Anderson, a Florida lawmaker and rare disease advocate who lost his son Drew to Tay‑Sachs, discusses expanding newborn whole genome sequencing. He shares the long diagnostic journey, building a statewide screening program, partnerships with researchers and industry, privacy safeguards, and how he turned personal loss into public policy to help other families.
