Embodied ‘I’ve Got The Same Thing You Do’: Ehlers-Danlos Across Generations
Soph Myers-Kelley and his mom, René Myers, have always been close. As of five years ago, they also share a diagnosis: the connective tissue disorder Ehlers-Danlos Syndrome. Soph and René were diagnosed one year apart – Soph was 25; René was 60. EDS explained symptoms they’d both been experiencing for decades, including waking up with jaw or shoulder dislocations and having chronic pain.The two talk with Anita about how their diagnoses began a new chapter of their lives, including the decision to move in together last summer.
Meet the guests:
- Soph Myers-Kelley is a medical librarian at East Carolina University
- René Myers is Soph's mom and a retired educator
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Please note: This episode originally published February 20, 2025.