The SENDcast Understanding Epilepsy's Impact on Children and Young People with Catherine Hodder
In recognition of International Purple Day today, Catherine Hodder, Head of Policy, Influencing & Youth Voice at Young Epilepsy joins Dale to discuss 'Understanding epilepsy's impact on children and young people'.
Epilepsy affects around 1 in 200 children in the UK, yet 1 in 3 children with epilepsy do not get the support they need to fully participate in school life.
Epilepsy is one of the most common conditions affecting children and young people, yet it is often misunderstood. Seizures can be subtle and are frequently missed or mistaken for inattention, many school staff do not feel confident responding when a seizure occurs, and as a result some children are unnecessarily excluded from lessons, sports and school trips.
Catherine explains:
- What epilepsy is and how seizures can look very different.
- Common myths and misunderstandings.
- Practical, school-focused advice: Individual Health Care Plans, emergency medication, and how to respond when a seizure happens.
- The impact of epilepsy on learning, memory and mental health.
- How schools can improve inclusion so young people don't miss out.
- A reminder about the DfE consultation on updated guidance for supporting pupils with medical conditions (open until 1 May).
This episode gives clear, practical guidance that helps staff feel confident supporting pupils with epilepsy - from first aid basics to building a supportive, inclusive school culture. It's full of resources and actions schools can take straight away.
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About Catherine Hodder
Catherine leads Young Epilepsy's policy, influencing and youth voice work to improve support systems for children and young people with epilepsy across the UK.
Contact Catherine
http://www.youngepilepsy.org.uk/
https://www.facebook.com/YoungEpilepsy
https://www.instagram.com/youngepilepsy/
https://www.tiktok.com/@youngepilepsy
inclusion@youngepilepsy.org.uk
Useful Links
You Can Help – Seizure Support Films for Young People
Purple Day – an annual awareness day for epilepsy
Supporting children and young people with epilepsy
Updated draft guidance on supporting children and young people with medical conditions
- B Squared Website – www.bsquared.co.uk
- Meeting with Dale to find out about B Squared - https://calendly.com/b-squared-team/overview-of-b-squared-sendcast
- Email Dale – dale@bsquared.co.uk
- Subscribe to the SENDcast - https://www.thesendcast.com/subscribe
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