Consider This from NPR One Couple's Fight to Cure ALS
Jul 13, 2023
This inspiring story follows Brian Wallach and Sandra Abrevaya as they fight against ALS after Brian's diagnosis. They founded a non-profit called I am ALS, advocating for increased research funding and awareness. Their efforts led to significant legislative changes, including $100 million allocated annually for ALS initiatives. The couple's journey highlights resilience, community, and the power of love in the face of a terminal illness. They share personal insights on navigating the emotional landscape of ALS while maintaining hope for a cure.
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Brian Wallach's ALS Diagnosis
- Brian Wallach, a former Obama staffer, was diagnosed with ALS.
- This led him and his wife, Sandra Abrevaya, to launch I am ALS, a nonprofit advocating for increased funding and research.
Act for ALS
- Wallach and Abrevaya's advocacy led to the Act for ALS.
- This legislation provides $100 million annually for ALS initiatives and expedites access to treatments.
Wallach's Advocacy on Capitol Hill
- Wallach tirelessly lobbies Congress for more ALS funding.
- He uses a motorized wheelchair and a microphone to navigate the Capitol and amplify his weakened voice.