Measuring the Value of Complex Care Programs to Families, With Families

In this Complex Care Journal Club podcast episode, Drs. Astrida Kaugars and Jessica Schnell discuss a measure development and preliminary validation study of a Complex Care Program Family Impact Questionnaire. They describe the importance of capturing the value of complex care programs, the four domains of program impact that were identified (general satisfaction, caregiver well-being, family well-being, and medical care empowerment), and next steps from this work. SPEAKERS Astrida Kaugars, PhD Professor, Psychology Marquette University Jessica L. Schnell, MD, MPH Associate Professor of Pediatrics, Complex Care Medical College of Wisconsin HOST Emily J. Goodwin, MD Clinical Associate Professor of Pediatrics, University of Missouri, Kansas City School of Medicine Pediatrician, General Academic Pediatrics Beacon Program, Children’s Mercy, Kansas City DATE Initial publication date: March 10, 2026. JOURNAL CLUB ARTICLE Kaugars AS, Bungert N, Lee KJ, Michlig J, Oswald DL, Paul MK, Quates SK, Schnell JL. Capturing caregivers' and families' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ). J Pediatr Psychol. 2025 Nov 16:jsaf096. doi: 10.1093/jpepsy/jsaf096. Epub ahead of print. PMID: 41241776; PMCID: PMC12826604. TRANSCRIPT https://cdn.bfldr.com/D6LGWP8S/as/qkc6tx5crb2k4pp6fpbc4gf/Kaugars_and_Schnell_final_transcript Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6. Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu CITATION Kaugars A, Schnell JL, Goodwin EJ. Measuring the Value of Complex Care Programs to Families, With Families. 3/2026. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/measuring-the-value-of-complex-care-programs-to-families-with-families.