Calling In Sick Inside a hospital stay with a chronic illness (my worst one yet)
This week on Calling in Sick, buckle up… because a LOT happened. After insurance delayed my IVIG (again), a big ‘ol flare hit. I ended up hospitalized, and experienced what became the worst hospital stay I've EVER had. And I've had a lot of hospital stays.
I'm walking you through the whole thing: the ER, the inpatient stay, the moment a doctor stood outside my room and said what he said (our biggest fear), the department head who told me he was going to cure me, and why I ultimately said YES to getting discharged, even though I probably should have stayed.
We're getting into:
⭐ How an insurance denial on IVIG set the whole spiral in motion, and what I do when a flare hits
⚠️ The ER experience (surprisingly good at first) and exactly when and why it fell apart
💊 What medical gaslighting actually looks like in real time… and how I caught it happening to me
😤 Medical misogyny hiding in plain sight and why my husband's presence changed how I was treated
📋 What I wish I had done differently, and the concrete steps I'm taking now (including filing a report)
If you've ever been dismissed, doubted, or talked over in a medical setting this one's for you. You're not crazy. You're not seeking you know what. You're sick, you’re in pain, and you deserve care without bias.
xx,
Alex 💙
💬 Comment: Have you ever been dismissed or gaslit by a medical team? What did you do?
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Intro:
00:00:00 Welcome back to Calling in Sick!
00:03:36 Alex's Picks of the Week (Tower28 SOS Spray & Lip Treatment)
The Hospital Stay from Hell:
00:06:05 Why I ended up in the hospital & the ER experience
00:11:03 Getting admitted and when everything changed
00:16:56 The moment that broke me (and what the doctor said in the hallway)
00:26:16 The department head visit promised he would CURE me!?
00:44:30 Why this is so harmful: the chronic illness literacy gap
00:46:00 The biggest 3 problems from this hospital stay
00:52:50 What I wish I had done differently + tips for your next stay
Conclusion:
00:55:30 One Brain Cell Show: The Secret Lives of Mormon Wives
00:58:00 THANK YOU for the 500 DMs of stories and support <3
00:59:33 Thank you for listening!
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Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/
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Alex’s Picks of the Week:
These were the two things that gave me any semblance of comfort during the hospital stay from hell… highly recommend adding both to your hospital bag!
✨ Tower28 SOS Spray — https://go.shopmy.us/p-38066811
✨ Tower28 SOS LipSoftie Lip Treatment — https://go.shopmy.us/p-48434391
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Thank you to our sponsors this week:
Sequencing: Sequencing is the premier platform for genetic testing and analysis that includes the world's largest collection of DNA reports. For more details, visit https://www.Sequencing.com — and don’t forget to use code “CIS20” for 20% off at checkout!
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#MedicalGaslighting #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #ChronicPain #HospitalStay #PatientAdvocacy #IVIG #Vasculitis #Lupus #CRPS #Endometriosis #PolyarteritisNodosa #MCTD #ChronicIllnessAwareness #SpoonieCommunity #HealthJourney #ChronicIllnessBlogger #CallingInSickPodcast #AlexWildeson
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