Being Bed Bound and Living With an Energy-Limiting Illness: Amelia Tang’s Story

In this episode, Peta speaks with model, actor and advocate Amelia Tang about what life looks like when illness reshapes everything. Amelia shares their experience of becoming disabled as a teenager, the long periods they spent bedbound, and how community kept them connected when they could barely tolerate light or sound.

They talk about modelling with a feeding tube, navigating friendships through chronic illness, and the daily realities of fatigue management. Amelia also speaks about their work supporting disabled people in group homes through the Young People in Nursing Homes National Alliance, and why accessible housing is essential for independence.

A thoughtful and generous conversation about identity, energy, and rebuilding a life at a different pace.

Connect with Amelia

Book Amelia: https://www.zbdtalent.com

Tenant Voice project for NDIS participants living in SDA/SIL: https://ypinh.org.au/tenantvoice/

Kit’s fundraiser: https://ko-fi.com/mutualaidkit

Connect with Peta Hooke
Instagram: @petahooke
Website: www.icantstandpodcast.com
Email: icantstandpodcast@gmail.com

Episode Transcript:
www.icantstandpodcast.com

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