TLC Sessions - Living with Long Covid Episode 62: Prof. Harlan Krumholz - Vibrations, LISTEN, and Paxlovid studies
Aug 13, 2023
Prof. Harlan Krumholz, cardiologist at Yale University, discusses his latest studies on Long Covid, including the LISTEN study, Paxlovid trial, and research into internal tremors and vibrations. He advocates for patient-centric care and emphasizes the importance of collaboration and advocacy for Long Covid patients. The chapter also explores challenges faced by patients, the need for open science and public comment on research, and the impact of internal tremors on individuals with Long Covid.
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Crash Triggered By Sensory Overload
- Kate described a sudden crash before travel with severe tremors, headaches, and mood changes.
- She linked the trigger to sensory overload from loud crowded events like a race.
IUD Linked To Symptom Flare
- Norine described severe symptoms after IUD insertion, including water retention and high blood pressure.
- She believed the device leaked hormones and affected her long COVID stability, prompting removal.
Patients Hold Key Knowledge
- Krumholz highlights an inverted knowledge asymmetry: long COVID patients often know more about their condition than clinicians.
- He urges clinicians to listen and learn from patients' lived experience and coping strategies.