On Being with Krista Tippett

Bruce Kramer — Forgiving the Body: Life with ALS

6 snips
Mar 26, 2015
Bruce Kramer openly shares his spiritual journey with ALS, finding beauty and growth in chaos. His experiences with disability, caregiving, and healing through vulnerability and creativity are highlighted, showing a deep reflection on gratitude and acceptance of death. A moving tribute to his love for music and life is also remembered.
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ANECDOTE

Diagnosis and Preparation

  • Bruce Kramer, a musician and educator, was diagnosed with ALS at age 54.
  • He reflects on how his background in music and growing up in a chaotic family prepared him for the order and chaos of ALS.
INSIGHT

Elegance of ALS

  • Bruce Kramer views ALS as elegant because it imposes order onto chaos.
  • Embracing this order helps in navigating the disease's progression.
ADVICE

Fighting vs. Accepting

  • Avoid the "fight" mentality common with disease; it's unproductive.
  • Accepting the reality of ALS is more helpful than fighting it.
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