Trigeminal Neuralgia. It's MORE than you Realize

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Trigeminal Neuralgia Beyond Nerve Pain: Marsha’s Racing, Menopause, and Advocacy Story

The episode explores trigeminal neuralgia as more complex than a simple nerve injury, often overlapping with nociplastic chronic pain features like widespread pain, fatigue, insomnia, and brain fog. Marsha, a longtime off-road racer, recounts an eight-year path to diagnosis after severe electric-shock facial and scalp pain, repeated ER visits, normal imaging, and feeling dismissed as drug-seeking. She describes TN as “torture,” worse than childbirth, and details treatments including carbamazepine, gabapentin, nerve blocks, and gamma knife, which provided about a year of relief but left facial numbness and corneal damage with vision loss. She also has Sjögren’s syndrome, concussion history, anxiety/depression, and discusses perimenopause/menopause timing, hormone therapy trials, and possible ADHD. Racing helps her cope mentally, though symptoms worsen after removing her helmet, and she emphasizes support groups, self-advocacy, and not giving up.

00:00 Trigeminal Neuralgia Beyond Nerves
05:05 Marsha’s First Symptoms
07:26 ER Visits and Misdiagnosis
08:35 Finally Getting a Diagnosis
09:38 Becoming an Advocate
13:49 What TN Feels Like
15:58 Neuropathic vs Nociplastic Pain
17:14 Treatments and Gamma Knife
23:13 Concussions and Early Clues
28:14 Hormones Menopause Connection
36:38 Racing as Therapy
39:23 Daily Management and Race Day Routine
41:42 Racing as Flow State
44:29 Adrenaline and Desert Races
46:46 TN Community and Daily Struggles
48:37 Fatigue Meds and Survival
52:13 Living Without a Cure
55:02 Faith and Being There
56:38 High School Trauma a

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When I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.

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