Our guest today is Rohan Seth. In 2018, Rohan and his wife Jen welcomed their daughter Lydia into the world. Shortly after birth, she began to have seizures, and within a few weeks it was discovered that she has a rare genetic mutation affecting her brain function. Rohan shares his family’s story, their perseverance in seeking answers as well as others with the same condition as Lydia’s, the lengths they went to in order to improve the prognosis for their daughter, and their journey with Orchid. Rohan Seth and Jen Fernquist Seth have set up Lydian Accelerator, a non-profit whose focus is to accelerate building a platform to help drive the development of technologies that are extremely effective at silencing these mutations at the source. Learn more at their website below. As a registered 501(c)(3) non-profit, donations are tax deductible. https://www.lydianaccelerator.org/
Conceivable with Noor