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“In sickness and in health”: what no one tells you about caring for a loved one

7 snips
Feb 21, 2026
Laura Mauldin, a disability studies scholar whose own caregiving experience shaped her work, shares personal stories and research. She talks about becoming a primary caregiver overnight, the hidden labor families shoulder, how policy and ableism shape care access, and how couples adapt, find resilience, and imagine better support systems.
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ANECDOTE

Young Partner Becomes Full-Time Caregiver

  • Laura Mauldin became Jay's full-time caregiver after Jay's leukemia returned and a bone marrow transplant.
  • That role persisted for years and reshaped Laura's life and scholarship.
INSIGHT

Invisible Burden Of 'Being The One'

  • "Being the one" is an invisible role that emerges from intimacy and cohabitation rather than formal assignment.
  • That invisibility creates both deep personalized care and barriers to delegating responsibilities.
ANECDOTE

MS Couple Locked Out Of Medicaid

  • Tina, blind since childhood, developed progressive MS and required increasing help from her husband Ben.
  • Financial limits kept them from Medicaid, forcing Ben into unpaid, risky caregiving choices.
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