Life Matters - Full program podcast

Talking about Tourette's and what universal child care could look like

Feb 25, 2026
Mandy Maysey, president of the Tourette Syndrome Association of Australia and parent of children with Tourette's, speaks about living with involuntary tics and making public spaces kinder. Georgie Dent, CEO of The Parenthood, outlines ideas for universal early education and care in Australia. Patrick Stokes, philosophy professor, ponders identity and head transplants. Mick Thomas, veteran musician, shares short money anecdotes.
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INSIGHT

Tourette's Tics Are Involuntary Neural Leak

  • Tourette's tics are involuntary due to a weak neural "gate" that lets unwanted signals through, not deliberate insults or behaviours.
  • Seamus Evans compared it to an itchy arm you scratch unconsciously and said editing the BAFTA broadcast erased an authentic depiction of the condition.
ADVICE

Give Disclaimers For Known Tics On Live Broadcasts

  • Warn audiences and provide context when someone with known coprolalia will appear in live broadcasts to reduce shock and misunderstanding.
  • Seamus suggested a simple disclaimer like those for violent or adult themes before live events.
ANECDOTE

Family Accounts Of Physical Harm And Constant Advocacy

  • Mandy Maysey described personal family experiences of public abuse, physical harm and the need to develop a thick skin living with children who tic.
  • She said her child has been physically assaulted and the family constantly advocates with schools to manage incidents.
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