The Dr Louise Newson Podcast 49 – Endometriosis, dismissal and the fight to be heard
Mar 3, 2026
Evelyn Scott, author and women’s health advocate living with endometriosis, fights for better recognition, research and care. She describes dismissal by clinicians and the wide-ranging, inflammatory nature of the condition. The conversation covers surgical limits, hormone roles, comorbidities, postcode variation in care, and practical steps for advocating and finding better support.
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Endometriosis Is Extremely Common Yet Underfunded
- Endometriosis affects about one in ten women and is as common as diabetes.
- Evelyn Scott compares prevalence to diabetes to highlight the disparity in research funding and seriousness of response.
Endometriosis Is A Systemic Inflammatory Disease
- Endometriosis and adenomyosis are inflammatory, multi-organ conditions, not just gynecological issues.
- Louise Newson and Evelyn Scott note deposits can appear on bowel, diaphragm, lungs and cause systemic symptoms like fatigue and migraines.
Visible Disease Does Not Predict Pain Severity
- Visual extent of endometriosis doesn't reliably predict pain or symptoms.
- Louise recalls cases where little visible disease caused severe pain and vice versa, challenging staging usefulness.