Demystifying PANS/PANDAS Podcast Inside a PANS Flare: A Child Explains What It Feels Like
What if the behaviors everyone sees aren't choices at all, but signs of a brain under siege? In this episode of Demystifying PANS/PANDAS, Dr. Nancy O'Hara speaks with ten-year-old Aiden and his mother about living through PANS, the loss of control it brings, and what helped them finally find clarity, compassion, and a path forward.
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About the Guest:
Aiden is a ten-year-old living with PANS who courageously shares his personal experience to raise awareness and understanding. After years of misdiagnosis, Aiden is now participating in a research study involving IVIG therapy and continues to navigate recovery with insight far beyond his years.
Outside of his health journey, Aiden is the founder of Bottle Caps Are Cool, a business creating NFC-enabled bottle cap charms, with a portion of proceeds supporting people experiencing homelessness. He is passionate about helping others, spreading awareness, and reminding adults that behavior is not always a choice.
Website: https://www.bottlecapsarecool.com/
Facebook: https://www.facebook.com/profile.php?id=61556882294755
Instagram: https://www.instagram.com/tap_caps/
LinkedIn: https://www.linkedin.com/in/aiden-newman-852a4340/
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Nancy O’Hara, MD, MPH, FAAP, FMAPS
Website: https://www.drohara.com
Facebook: https://www.facebook.com/drnancyohara/
Instagram: https://www.instagram.com/nhoharamd/
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This podcast is produced by DrTalks.com