Extreme physical restriction : listener question

Hello Clare, I have listened to your book REAL and I absolutely loved it.  It helped my mental health a lot.  But I have difficulty living by this concept when it comes to my physical health. I have Ehlers-Danlos Syndrome and due to that Cranio Cervical Instability. It is a horrible condition , which has absolutely destroyed my life. I have been bedbound for 2 years.  I can't work. I can't meet friends .  I can't read. The only thing I can do is watching movies and listening to music. This is a very rare condition and the doctors say there is no chance for it to get better.  I was 21 when I got sick. Now I am 27. Right now I am still fighting and trying out different things because the idea of accepting my current state is unbearable.  It is even hard to write this message because it is difficult for me to think... I have found  a few people online who say the y got better but they did a million things for that and I don't know if I have the energy to do that...  I would love to hear you opinion on this situation. ..