Thankfully, it's time for an actual expert to join us again on Bloody Minded! We are thrilled to be sitting down and chatting with A/Prof. Tracy King, Myeloma CNC from RPA Hospital in Sydney, Co-Founder and past president of the HSANZ Nursing Group. From convenient treatment schedulers to the side effects we should be thinking more about to many ideas to improve clinical practice, this is a veritable hour of power worth diving into.
TIMESTAMPS
2:23 - Intro to Tracy King
3:30 - A Nightingale Sang in Hammersmith Square
5:22 - How did you get into myeloma nursing?
9:35 - If not nursing, what?
10:50 - What is a CNC?
14:12 - Nursing expertise in myeloma - best supportive care
16:57 - The most asked questions
19:54 - Strategies to manage complex regimens
23:13 - MyeTxScheduler - A Godsend
26:37 - What do we miss, what should we be asking more?
28:21 - The crux of communication issues
29:33 - "What matters to you today"
29:49 - Patient advocacy groups
32:04 - Steroid side effects - there's just so much dex...
35:37 - M protein variations - how to see the forest for the trees
38:22 - Time toxicity
45:44 - Quality of life assessment tools
49:35 - How to get started in advocacy/education/further work?
51:57 - Organisations - find your tribe
Also we promised to link MyeTx here so have at it
https://rego.interact.technology/myetx/#/main
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